Posts tagged ‘breast cancer’

January 24, 2013

the remarkable thing about feathers and why my cancer experience wasn’t so interesting.

by wendi

feather

Within a month of being diagnosed with cancer, I realized I didn’t have time for bullshit.  I was experiencing a keen and urgent need to surround myself with only the people who mattered to me, uplifted me, or who weren’t afraid to talk about the hard stuff.  I was scared and freaked out, and I wanted to be encircled by authenticity more than I wanted fresh air.

As soon as the news got around to family, friends, coworkers and acquaintances, I found myself wading through an onslaught of emails, phone calls, notes and teary-eyed encounters by people who just weeks before didn’t seem compelled to ask about how I was “feeling” or “doing”. I was suddenly a cancer rock star; someone who people cared to know about because of what was apparently the most interesting thing in my life.

Total misconception: cancer makes the average person somehow remarkable and worth being around.

And the funny thing is that I fell for it, too. I still do from time to time. Cancer made me think that I deserved an urgency or specialness status that I didn’t/don’t. I thought that because of cancer and all of the crap that went with my experience of cancer, I shouldn’t have to deal with the normal everyday things that go with being a grown up (like dishes, making the bed, traffic, bitchy baristas, etc.). I thought I deserved to be treated…well, like a rock star.

I wrongly thought cancer made me somehow more interesting (it is why I started to blog, after all) and it raised the bar on what I thought people might be interested in hearing about my life. Cancer gave me something to talk about that made me unique in some way, and it brought many compliments my way. Cancer gave me the chance to be told on a nearly daily basis how “inspiring” I was (oh, how I detested that word after a while), and breast cancer entered me into a sisterhood of sorts. Cancer gave me an invisible superhero cape. And chemo was my kryptonite.

Funny thing about finding out you have something so terrible that body parts need to be removed and chemicals introduced to your bloodstream:  it becomes a fascinating piece of your story.

I balanced on the emotional seesaw of wanting every conversation to be related to cancer and wanting to avoid talking about anything related to cancer or cancer treatments. Especially when I was rocking a bald head and dealing with neuropathy in my fingers and feet, I would fluctuate between blurting out cancer talk to random strangers and lying to loved ones by saying I was feeling “great” or “wonderful”. Because logic does not always play a part of how one copes from cancer.

Now, well into my fourth year since diagnosis, I am all too aware that I need to find other ways to express my appealing, non-cancer related qualities. I also recognize how the further away I get from all of the details of dealing with cancer, the further I get away from identifying as a “survivor”. I am not just someone who dealt with cancer. That was just a small part of my story. And perhaps not the most remarkable thing…it just so happens to be the thing others find interesting.

And this all got me thinking…we all hide so many of the things in our lives that we may be absolutely out of this world on fire about or little bits of our magical fabulousness for fear of being uninteresting, unacknowledged, or altogether denied. I notice just how much people work at being “interesting” and fighting for a place in the playing field; at the bar, in the office meeting, over dinner, in social media, etc. We work at having the zingers so that we can have the spotlight or be acknowledged. And, really, it’s the people who aren’t in the spotlight who are oftentimes the ones with the most wisdom to share.

How a feather blew me away and reminded me of my personal freedoms.

Take, for instance, my pen pal who has been living for nearly 10 years at Monroe Corrections Center (since he was a teen). He writes me at least one letter a month, and sometimes it’s just a list of books he’s read, math problems he’s learned, or movies he has seen. He writes about what he thinks might have significance for me.

This week, I received an envelope from my friend with a tiny little feather tucked inside the letter. My friend has been holding on to this feather for years, because it’s a small reminder of freedom and of the outside world. He never told me about his feather until this letter, most likely thinking nobody in the world would be so interested in such a small and modest gift. He wrote:

I’ve had this feather 7 years. You might think that’s weird but 7 years ago when I found it I was happy to find it for in prison inmates don’t get to hold in their hand leafs, feathers. I guess the little things like that I miss.

This feather represents something really unique and valuable about my friend- that he can treasure and care for something seemingly insignificant, despite his circumstances. That he can still hold onto reminders of what the world is outside. And that he thinks about things like metaphor and meaning in a way that so many people neglect. I love this feather.

And we all have our feathers to offer the world. Little things we hold onto that are of value to us and that help us to get by or remind us of what makes us feel free. Or maybe it’s not an object, but an attitude, action, or truth. Whatever your feather is, I encourage you to share it with someone. You never know what you might get in return (and sometimes those feathers are just buried underneath piles and piles of bullshit).

March 4, 2009

bring on the cupcakes!

by wendi

Nearing the end of the countdown!!! 2 days until my final chemo infusion, and then most likely a week of physical and emotional detox before I can begin feeling relatively normal. I’m trying to remember what it was like not to question my body and the ever increasing side effects of this routine, and I can only wonder whether I will take my health for granted again. Will this experience make me even more hyper-sensitive or vigilant regarding my health?

Regardless, I plan on going to my last infusion in style- blue wig and tiara, courtesy of the fabulous Reen. We will toast to the staff and celebrate with friends who have been chemo buddies throughout the 5 months of weekly visits to the infusion unit at Swedish. We will eat cupcakes and sip champagne while the last doses of taxotere and carboplatin get absorbed by my body. We will be joyous and wacky in an attempt to mark the occasion as an ending and to put it behind us.

February 28, 2009

written 2 weeks ago…(February 15th)

by wendi

Funny to think about the many ways a life can change in one year- to consider how challenging it can be to make it through that year in one piece (or at least without losing so much of ones self as to become completely unrecognizable). And, truly, when I look back at one year ago, I hardly do recognize myself. In this year, I have had to reach down and pull from every ounce of courage and strength that I could muster, borrowing many times from friends and family, and outright faking it much of the time. I’ve come a long way, baby, but I have a long way to go.

After a one week break from chemo, I’m looking at three more infusions. Even though it’s been over a week since I’ve had my last treatment, I’m still feeling pretty crappy. The heartburn and urpy sensations continue, along with some very raw nasal passages. This chemo thing is no joke- it’s pretty damned unpleasant. I have no clue how I will muster what it will take to make it through the next three treatments. I used to think of three as such a small number…

On the beautiful bright side, this weekend I enjoyed a lovely visit from my sister Tami and her family. Although I was nervous about the initial shock of everyone seeing me in my post chemo state, it was actually quite an affirmation that family can be a good source of unconditional love. Even with moments of chemo brain, hot flashes, and a bald (or at least mostly bald) head, I felt like me- wacky and silly Wendi who says off the wall things and is a walking contradiction. Who couldn’t appreciate that? And even though I was tentative about having any strength to make it through a full day of family fun, I actually experienced a surprising amount of energy and had an incredible time being a part of a tribe- no matter how dissimilar we all are. That’s the beauty of family- that a person can be whoever he or she is and he or she will still be loved. Warts and all.

February 12, 2009

poster child

by wendi

I had the strangest feeling after my fifteenth chemo infusion- a feeling similar to being on dry land after a day of boating. Standing in the bathroom brushing my teeth, I sensed that I was still connected to the tubes and equipment that hold the bags of chemotherapy medications. When I moved, I had the vision of tubing coming from my chest, and I had the urge to wheel the infusion pole beside me. I made my way to bed and curled up in an exhausted heap, thankful that I’m nearly finished with this routine. I woke up unattached to any medical equipment, but with a lingering reminder that I have three infusions in the near future.

Maybe the fact that I’ve finally re-entered a structured yoga class is helping me with the mind-body connection, and this episode was a wakening of my senses. Or maybe it was a reminder that this cancer treatment experience will continue to be with me, even when I’m not connected to tubes. Either way, it was a freaky sensation, and it was a reminder that I hold every detail of this process in my body- every bit of what I’ve been through leaves an imprint, whether it is physical, emotional, or spiritual.

On the physical side, I’m the chemo chick poster child. I’ve become attached to my three cotton turbans, and I’ve decided that I have no time or energy to learn how to tie the proper head scarf (and I’m not as brave or dynamic as I had envisioned I would be- boldly going without any head covering at all). All but my thumbnails are gone, and my fingertips are looking pretty darned unhealthy. I’ve gained a good bit of weight from those pesky steroids (and the food that I can’t seem to keep from eating), I continue to experience daily nose bleeds, my skin tone is pasty, and I have some lovely bags under my eyes. Not the diva I had hoped to be…but, all in all, good spirits.

I’m ready to be done with chemo, though- to have Fridays free and to know that I won’t have the pesky side effects of fatigue, nausea or heartburn- to have the promise of good things in my future.  Countdown: three more infusions. March 6th should be the last one (time for a celebration!). Then it’s every three weeks for Herceptin treatments for one year, PET scans every 6 months, and the beginnings of a new normal. Whatever normal means.

January 26, 2009

finding grace

by wendi

The very first advice I received after being diagnosed came from a fellow survivor, several years out from treatment. She took me aside, and told me that I would be continually reminded how strong I needed to be throughout the treatment process, but that, in truth, there was far more grace and growth in accepting what my friends and family wanted to do for me. For the past four months, I have struggled with this lesson, attempting to recognize my limits while accepting the kindness and generosity of the people in my life. No matter how difficult this process becomes, every step has been softened by constant reminders that I am loved beyond words. Not that I ever denied the amazing qualities of my friends, family, and co-workers, I just never expected to be the one to test the depth of their compassion or, dare I say, dedication. I am one fortunate woman, cancer or no cancer, and not one day goes by that I don’t recognize it.

Friday marked my thirteenth infusion, leaving five to go (the countdown continues). Irene accompanied me, toting along a bag of healthy snacks, my chemo quilt, and the ice mitts that I purchased online in hopes of saving my hands from further neuropathy. Although it may be too late to save the nails that are pulling away from my fingers and turning a fascinating array of colors, I may be able to avoid further trauma to my finger tips. So, with fat blue icy mittens on my hands, I attempted to cozy into the treatment chair. Soon after, I was blessed by the fabulously distracting presence of Nayer, a new-found friend from work. Ahhh, the joy of diversions! While Irene went for coffee, Nayer kept me company. When Irene returned with yet another dear friend, Gol, Nayer played music and projected various images of the sea onto the wall in the treatment room. I couldn’t have felt more fortunate, surrounded by beauty and the joy of friends, even as the nurses came and went, checking my blood pressure, monitoring my meds, and confirming my name and birth date. I left my thirteenth treatment feeling like a princess, with a strong desire to dance under the wintery night sky. Although my energy quickly dissipated, my appreciation for friends (and an incredibly patient and loving partner) continues.

For the first time since beginning chemo, I took down the book of blessings from friends and photos of me and Irene  from the bookcase. I re-read the tender words that people shared at my blessing ceremony and I looked at the images of me prior to surgery- baring the chest that would soon be altered forever. That Wendi had only a slight idea of what was ahead of her, and yet I can see some amount of strength and courage in her eyes (along with fear). Looking in the mirror today, I see a different beauty- stark, humble, hopeful, and marked by a deep desire to find grace amidst the avalanche of change. On Friday, Nayer asked me what my relationship with this cancer is, and I didn’t have a good answer. I considered the fact that my body made this cancer, and that it is/was a part of me. Because of cancer, part of me has been taken away. And because of cancer, I have allowed the beginnings of grace to grow from the scars.

The deepest gratitude to everyone who shares this journey with me. I can’t possibly imagine what it would take to make it through this craziness without the love, laughter, and presence of my community. Oh, and the meals, cards, emails, surprise grants, and encouragements have been gratefully and graciously (I hope) appreciated. My heart is full of abundance, and I am blessed, blessed, blessed.

Follow

Get every new post delivered to your Inbox.

Join 389 other followers

%d bloggers like this: